Privacy Policy

This website is owned and operated by the National Association of Children’s Hospitals (“NACH”, “we”, “our”, or “us”). NACH respects the privacy of visitors to our website. This Notice describes the types of information we collect about visitors to the “Sound the Alarm for Kids” website, how we may use the information, and with whom we may share it. This Notice also describes (1) the measures we take to safeguard the information we collect and (2) your rights and privileges concerning our collection, use and disclosure of information about you.

This Notice applies to the Sound the Alarm for Kids website, located at, as well as to any versions of the Sound the Alarm for Kids website that NACH operates.

For clarification, this Notice applies only to information collected through the Sound the Alarm for Kids website and does not describe the ways in which we may collect or use information obtained offline or the collection, use and disclosure practices of any of NACH’s organizations under common governance or members, who make our services available on or through their websites (collectively, “Affiliates”) or other third parties. For information on the collection, use and disclosure practices of an Affiliate or other third party, please review the privacy policy on the applicable party’s website.

Information We Collect

The information we collect falls into three categories: Personal Information, Testimonials and Site-Level Data. “Personal Information,” as used in this Notice is information that we directly associate with a specific person or entity, such as name, email addresses, zip code (and in some cases, a full mailing address). You are not required to provide Personal Information at any time while visiting the Sound the Alarm for Kids website; however, you may be required to your name, email addresses, zip code (and in some cases, a full mailing address) to use certain NACH services and register as a user on the site. The Personal Information you provide will vary based upon the context, and we will not collect your Personal Information unless you make it available.

“Testimonials,” as used in this Notice is information you submit about your health history, or that of a family member, as well as any photographs and audio, and/or video messages that you submit. Once you have registered as a user on the site, you may submit Testimonials about your health history, or that of a family member, as well as photographs, and audio or video messages.  Any Testimonials you provide, and the health information contained therein is completely voluntary and the amount of content you choose to provide is controlled by You. Unless you specify otherwise, these Testimonials will be publicly available on the site; such public Testimonials shall not constitute Personal Information and are not subject to any federal or state law with respect to the protection of personally identifiable health information.  The content of the health testimonials is subject to the Website terms and conditions located here.

“Site-Level Data,” as used in this Notice is anonymous information regarding use of our website or services that is collected and/or aggregated by or on behalf of NACH through the use of automated means, which include cookies. “Cookies” are small identifiers sent from a web server that are stored on your computer’s hard drive for the purpose of identifying your browser during interaction on websites or storing information or settings in your browser. Site-Level Data collected through these automated means may include information that we gather and store about your visit to, and use of, the Sound the Alarm for Kids website, such as your IP address, type of browser and operating system used, date and time you access the websites, pages you visit, and if you linked to this website from another website, the address of that website. Site-Level Data does not include Personal Information and is not treated as Personal Information under this Notice.

In addition to the cookies we set, we may also allow certain third-party analytics service providers to include cookies within the pages of the Sound the Alarm for Kids website on our behalf and to retain and use Site-Level Data received from such cookies and web beacons themselves. Third party service providers that collect Site-Level Data on our behalf may offer information about their data collection practices, and in some cases, an opt out on their respective websites which you can access here.

Most web browsers automatically accept cookies, but you can usually modify your browser’s setting to decline cookies if you prefer. You may also render some web beacons unusable by rejecting their associated cookies. If you choose to decline cookies, certain features of the Sound the Alarm for Kids website may not function properly or at all as a result.

How We May Use the Information We Collect

We may use the Personal Information and Testimonials we collect for the following purposes:

  1. for our everyday business purposes, such as establishing and managing your customer account, and  providing customer support;
  2. to communicate about, and administer your participation in, special events, programs, surveys;
  3. to enable you to interact with NACH and other users of our website through our message boards, blogs and social media;
  4. to perform data analyses, including market and consumer search, trend analysis, demographic analysis and; and
  5. to comply with applicable legal requirements and our policies.

In addition, we use Site-Level Data collected through automated means for purposes such as:

  1. delivering content (including advertising) correlating to our users’ interests based on the ways in which our users interact with our website;
  2. diagnosing technical and service problems; and
  3. administering our website.

Applications and Widgets

We may include applications or widgets from third parties on some pages of this website that allows interaction or content sharing by users. “Widgets” are mini-programs that provide specific services or content from a third party. These widgets, such as a Facebook “Share” or “Like” button, are visible to you on the webpage you visit. Your interaction with a widget typically allows the third party to collect some information about you through the third party’s cookies or its registration information. In some cases, the third party may recognize you through its widgets and cookies even when you do not interact with the widget. Please visit the third-parties’ respective privacy policy to better understand their data collection practices and controls they make available to you,,,  The privacy policies of those third parties apply to, and controls, all data collection practices via interaction with such widgets.

Information We Share

We may share Site-Level Data and Testimonials with third parties, including our Affiliates, dealers, marketing businesses and lead generation businesses, for any reason and without notice to you. We do not sell or otherwise share Personal Information except as described below:

  1. Organizations under common governance. NACH may share your Personal Information with the organizations under common governance with NACH so long as the disclosure and use of your Personal Information by such entities is consistent with this Privacy Policy.
  2. Service Providers.  We may engage third parties to provide a platform for and host this website or provide other services to us. In such cases, we require such providers to maintain your Personal Information as confidential and to use the information only to perform the services specified by us in a manner consistent with this Privacy Policy.
  3. Other. We may access or disclose information, including Personal Information, to: (i) protect or defend our interests and the legal rights or property of NACH and our Affiliates; (ii) protect the rights, interest and safety and security of users of our website or members of the public; (iii) protect against fraud or for risk management purposes; or (iv) comply with prudent legal practice as we may determine, applicable law or legal process. In addition, if we sell all or substantially all of our business or sell or transfer all or a material part of our assets, or are otherwise involved in a merger or transfer of all or a material part of our business, we may transfer all information we have collected and stored, including your Personal Information, to the party or parties involved in the transaction as part of that transaction.

Privacy Protection for Children

Services offered by NACH are not directed to individuals under the age of thirteen (13). NACH does not knowingly collect Personal Information (as defined below) from individuals under thirteen (13) years of age. No information should be submitted to or posted to the Sound the Alarm for Kids website by visitors younger than 13 years old. A parent or guardian, however, may post a Testimonial about a child under the age of thirteen (13).

Your Choices

You are entitled to make certain choices about how we communicate with you and the information we collect from you and share with third parties. You may choose not to receive marketing email communications from us by clicking on the unsubscribe link in our marketing emails, adjusting your email preferences or contacting us as specified in the “How To Contact Us” section below. You also may withdraw your consent for NACH to share your Personal Information with third parties as described in this Notice by contacting us using the means specified in the “How To Contact Us” section below, and we will honor your request.

Your California Privacy Rights

California Civil Code Section 1798.83 entitles California customers to request information concerning whether a business has disclosed Personal Information to any third parties for the third parties’ direct marketing purposes. As stated in this Notice, NACH will not sell or share your Personal Information with non-NACH companies for their direct marketing purposes without your consent. California customers who wish to request further information about our compliance with this law or have questions or concerns about our privacy practices and policies may contact us as specified in the “How to Contact Us” section below.

Access and Correction

Subject to applicable law, (i) you may obtain a copy of certain Personal Information we maintain about you or update or correct inaccuracies in that information through your account on or (ii) you may have the right to obtain access to Personal Information we maintain about you by contacting us as indicated in the “How To Contact Us” section below. To protect your privacy, we will take steps to verify your identity before granting you access to the information. If you believe that Personal Information we maintain about you is inaccurate, subject to applicable law, you may request that we correct or amend the information by contacting us as indicated below.


The Sound the Alarm for Kids website may contain links to websites or web pages not operated by NACH. Once you leave the Sound the Alarm for site, we suggest that you review the applicable privacy policy of the third-party website, among other things, how they will handle any Personal Information they collect from you. We are not responsible for the content of any websites that are not affiliated with NACH, any use of those websites, or the privacy practices of those websites.

Data Security

NACH uses commercially reasonable administrative, technical, personnel, and physical security measures designed to safeguard Personal Information in our possession against loss, theft and unauthorized use, disclosure, or modification. Of course, despite these measures, we cannot guarantee perfect security of networks, servers and databases we operate or that are operated on our behalf.

Updates to this Notice

We may update this Notice to provide clarification or notice of changes to our practices. If we make changes, we will revise the date at the top of this Notice.  If we propose to use Personal Information in a materially different way, we will provide you with additional notice by posting notice of the changes on the Sound the Alarm for Kids website for at least 30 days before we implement those changes, and we will obtain your consent for any material change regarding disclosure of Personal Information in accordance with applicable law.

How to Contact Us

If you have any questions or comments about this Notice, or if you would like us to update information we have about you or your preferences or delete any Testimonials you have posted, please contact us by email at